Prioritize treatment: End spasms to minimize developmental delays Obtain diagnosis: Confirm an irregular brain wave pattern with an EEG test. Take a video: Record the symptoms and talk to your doctor immediately. See the signs: Clusters of sudden, repeated, uncontrolled movements like head bobs or body crunching. This helpful mnemonic tool – an easily remembered acronym-is STOP Infantile Spasms: With the mnemonic as the centerpiece for 2017 awareness, we reached over 195 million due to the collective efforts of ISAN. During ISAW 2017, the Infantile Spasms Action Network (ISAN) introduced the STOP Infantile Spasms mnemonic. IS can be misdiagnosed as colic, reflux, or a startle reflex.Īlthough awareness efforts are year-round, Infantile Spasms Awareness Week (ISAW) is held annually on December 1-7. Infantile spasms are caused by a condition in a baby’s brain and include repetitive, but often subtle movements-such as jerking of the mid-section, dropping of the head, raising of the arms or wide-eyed blinks. Infantile Spasms (IS) are a medical emergency. Infantile spasms are a rare, but very serious type of seizure. Questions about ISAN? Want your organization/company to get involved? Visit.
Today, this group has grown into a collaborative network of 30 national and international entities focused on raising awareness for infantile spasms. The group discussed a comprehensive strategy to raise IS awareness. IS efforts are showcased during ISAW. In 2016, CNF convened two forums that brought together epilepsy advocates and leaders from provider member societies. In 2015, CNF partnered with the Tuberous Sclerosis Alliance (TS Alliance) to lead a multi-year IS awareness and education initiative. Currently over 30 national and international organizations strong, ISAN hosts Infantile Spasms Awareness Week every December and created the STOP IS mnemonic-seen by 195 million! Visit to learn more.
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